looking very forward to being home

Good day today. Little bit of physical therapy and rest. Jane is doing good. We even caught a glimpse of navy pier fireworks out our window.  Both of us are looking very forward to being home when this is all over. Thank you for friendship and prayers and support!!

labs are looking good

Had a good day today. Jane's labs are looking good. They are not bothering to check CO2 levels because Jane is physically feeling and looking much better. Couple friends from church surprised us with a visit in the morning which was a nice treat!

We found out we are scheduled to go back to rehab next Monday or Tuesday. Which we are fine with because we are comfortable at hospital. The physical therapy is as much but Jane and I make up the rest on our own. And we get to hang with Ernie the service dog :)

Jane is scheduled for her bronchoscopy Monday during which they will do her a lung biopsy to check for any new rejection.  If rejection is present they will give her the appropriate treatment for it. We are a little anxious be every medical procedure seems to have it complications regardless of how simple. 

cystic fibrosis

Ernie the service dog was back today ( I thought his name was Eddie in earlier updates). We love to see him and we found out today that his mother (owner) has cystic fibrosis and is on the list for getting a lung transplant! We were able to chat with a couple of their family members. Jane shared her transplant testimony. 

Had easy going day no tests. We walked in the halls four times throughout the day. Jane is doing good had more energy today.  They may send us tomorrow to the rehab center or if not very soon. 

Both of us personally like it here better at the hospital...sounds weird to say. 

mechanical soft to regular

Today was just like yesterday expect no tests and no Eddie the service dog. Jane is resting up and gaining strength to go and finish up her physical therapy at RIC. We don't know what day we will be sent back but I am sure by end of the week.

We got her diet upgraded today from  mechanical soft to regular...so now she has more hospital food to choose from. Which is not as great as it may sound . But either way if Jane ever get a craving for something I can just go out and get it. Like today it was for a  McDonald's sunday. Which we both had for dessert. 

Eddie

Pretty much an all good day. CO2 levels continues to drop today is at 60. Jane has more energy and less sleepiness today. Appetite is still there.  It's good to see her like this. 

CT scan was done of her lungs again to check fluid status around her lungs.  We haven't gotten any word back on results.  An ultrasound was done of her body checking for new blood clots. None found and old one in her is dissolving well. 

 

She is getting another unit of blood today to top off her hemoglobin...that will give a nice energy bump. Her hemoglobin did drop (6.9) they believe cause of many blood draws she has had. 

We were visited by friends and earlier in the day meet a cute little service dog named Eddie. Picture attached. 

 

Chiago Air and Water Show

Quiet day today. We were able catch a little bit of the air show which was fun. 

 

Jane will be on the BiPAP (I was calling it CPAP in updates earlier by mistake) tonight again to see how much more co2 can be removed. They want to a level in the 40s. Currently her co2 levels are in the 60s. She, like yesterday more awake today and has more energy.

Will be an interesting week to see how much of the co2 we can get rid of.

 

Thanks for everyone's prayers!

Another moving day

Another moving day. They moved us out of ICU and into a regular hospital room on pulmonary floor. Good timing because this will give a decent view of the last day of air show tomorrow. 

They have been able to get Jane's CO2 levels a little lower by using the cpap machine over night. Also tests show her kidney function is improving.  Which equates not needing to be in ICU

The transplant team has been hard nosed about all her tests so the fact they OKed  her moving out of the ICU says a lot about her wellness. They do believe she is malnourished needs more protein. Good that she is getting her appetite back. 

Our new view

 

We will stay here until she get more strength back then it's back to RIC to finish physical therapy so we can go home!