Trilogy BiPAP

Today Jane was feeling very nauseous so wasn't able to eat much breakfast or lunch but had a little bit of dinner as she felt better. They delivered our home bipap machine to the hospital room. So we can learn how to use it before we get home.  Doctors will set up tomorrow and we will try using it Saturday night.  

We will go to rehab Sunday and hopefully be discharged home next weekend. That's our hope. 

Boring Day Today

Today I was actually a little bored for the first time. Maybe because our minds are set on being home. But it was.nice not to have much medical excitement.

Today also first time Jane ate little bit at breakfast lunch and dinner.  We walked a few times in halls as usual. 

Quiet Jane news day today. Thanks for everyone's prayers!

biopsy results.

Finally got biopsy results. Happy to say zero, no, nada, no new rejections. Plus the lungs in general look great.  That news made the day overall nicer. Jane is feeling and breathing better today. Also, we had a visit from a friend form church and had a good. 

Still on track for being home in a week or so. Should be going to rehab late this week.  

Testing is showing that Jane's right diagram is not moving much. This could explain more of why her  breathing is not where they expect.  Looking back on testing done on her in 2013  before transplant right diagram wasn't moving much then either.  They don't think this too much of a big deal. But plan to look more into this in the future. In general Jane is on the right track to have her breathing to slowly improve as time goes on diagram or not.

Quite Day

Had a quiet day today. Which fine because of the crazy day we has yesterday.  Her breathing is a little more labored today...that's because of the bronchoscopy and biopsy yesterday has caused air irritation. Her voice is scratchy for the same reason. All the doctors are surprised and very happy to see her complete recovery from yesterday's respiratory failure. 

Now we are gearing up to go home soon. It is at a point where staying in hospital is becoming more of a barrier for her recovery and the doctors agree. We still don't have results back from biopsy yet should have tomorrow. 

Physically therapy at hospital has been light as they see Jane is able to most basic things again now herself. 

Right now looks like we will be back to rehab in two days or so. Then about a week there then...onto home, finally! Assuming no more weird complications. 

Total Respiratory Failure!!!

Bronchoscopy/biopsy did not go as planned but it ended up being a happy ending. The doctor came to see me after the bronc was complete, said Jane did not do well and had full respiratory failure.  So he had no choice but to put her on the ventilator to keep her breathing.  They had already whisked her away to ICU by this time. The doctor who did this is considered the best at Northwestern for doing broncs. He said he does not know what happened and can't explain why she crashed but she crashed instantly and very badly. He looked upset and bewildered. No one wanted Jane back on the ventilator because she may become stuck on it.  But there she was back on it!

I was not happy and seeing us back to square one in her recovery. I called Jane's cousin Carol who had encouraging words and prayers.  When I got back to the room I woke Jane up and I could tell she was really pissed off...this is a good sign I thought.  Then she was like WTF! and wanting the ventilator tube pulled out her mouth immediately.   They did not want to take her off but after seeing Jane's reactions and alertness for a few minutes they just pull the tube out.  And Jane a little angry but fine :) breathing on her own.  This is all of your prayers and God confusing the wise. I guess that makes us the fool  who God used but I will take that.

We are now out of the ICU and back in our room resting after a long day! We will get the biopsy results tomorrow.  

Tomorrow at 10:30 am

Jane is feeling less nauseous today. So able to eat a little bit of food and drink her boosts. Wen for a couple walks in hallway for exercise.

Tomorrow at 10:30 am  Jane has her 60 day bronchoscopy and biopsy. It's pretty routine but Jane is very anxious as all procedures have ended up in complications. So please pray for peace of mind for Jane, no complications and no new rejections. We should have results of biopsy that day. 

feeling nauseous

Jane was  feeling nauseous last night so she didn't sleep well. So today we took it easy and she took extra naps. Not much of an appetite today either. The nausea has gotten a little better as the day went on. Her nausea is caused by her rejection medications and she does take anti-nausea medicine for it. Some days it isn't enough. Hopefully tomorrow nausea is better