I was expecting the rejection to be better because after the last steroid treatment, I had notice a big change in Jane's energy level and appetite which has continued to stay with us. Her weight is holding steady now for several weeks.
Latest test has shown her kidney function is lower than expected so we are seeing a the kidney specialist at Northwestern too. About transplant patients have kidney issue in the long run. One of the anti rejection medications does this (tacrolimus A.K.A. prograf). It is a trade off it works to keep the body from rejecting the donor organ but is not without side effects. They will continue to monitor her kidney levels and may switch to another. There is a good chance her low kidney levels could be due not drinking enough water...we will see.
They prescribed another 6 months of IVIG treatment to help boost her body's immune system. This is sort of pain because it is given through IV and takes several hours. And the fist time she had it in April she go massive migraine headache that lasted 3 days. The next treatment she is actually have having today as I write this blog entry and is ready with migraine medicine if it happens again. Well at least it is only once every month.
On some more positive notes. Our geese in the backyard have had there chicks, it cute to see them come out to eat and swim in the pond out back.
Jane was able to host a table and our church's women's tea party event. One friend from our lung transplant support group and one of her repertory therapists from when she was in the hospital where also able to attend.
Jane got a cool crazy cat lady t-shirt from her cousin in Florida (we do have six cats plus one outdoor cat)
Looking forward to Jane's one year anniversary of the transplant which will be on this coming June 4th
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